Monday, January 19, 2015

Touched by Sweet Remarks....

     Yesterday for Sacrament mtg. the speakers topic was on Depression. The first speaker has chronic depression and shared some personal feelings and experiences that she has had. What it feels like, how sometimes the sadness is so overwhelming that nothing helps. She made the comment that she had tried to take her own life (3) times. it was her faith that she kept holding on to, especially in the darkest hours. She is an amazing woman. I knew she had struggled with health issues but didn't know what and to the extent it was. Never judge a book by its cover ...you never know what someone is going through until you've been in their shoes yourself.
     The second speaker was a clinical psychologist who had been practicing for 30 years. He was serving currently as a bishop in our stake. He was also very personal, telling us that he himself is on medication. He tries to go off of it every once in awhile for a few days and realizes that it makes a difference so he starts taking it again. He proceeded to talk about the myths of depression and what the real truth is behind them. One statistic he gave was that 60% of people that go see the doctor have some kind of mental illness, not just depression. He also stated that most people will have at least one major depressive episode in their lifetime. Then he proceeded to tell his own personal story of when his wife was diagnosed with breast cancer. He spoke about when they found out the first thing you think of is dying, you become overwhelmed. He talked about how the only treatment they recommended at the time was a radical intense chemo treatment. So they asked how much it would cost? It would be $150,000. They didn't have very good health insurance at the time and most insurance companies wouldn't cover the treatment. So, they had to raise the money. With the efforts of friends and family they were able to raise $88,000 with in about 3 weeks. He talked about what the chemo did to your body, in that it takes you to where you are almost dying in order to kill the cancer cells. He talked about how sick she got and weak. He mentioned how their Relief Society brought dinner into them for weeks. He and his wife commented how "in the midst of your affliction your table is spread". They had so many answers to prayers and miracles happen. He said at one point when his wife was in the hospital and was very down, the impression came to her that every thing would be alright. He was mowing the lawn crying while he was doing so, not knowing how they would handle this, when he received an impression that everything would be alright. They put their trust and faith in God. Twenty years later she is still cancer free.
     So far it had been an excellent mtg. until he started to talk about his wife and her cancer. I fought to hold back my tears! It was so close to home for me. I could relate to everything he was saying. I had been there and had those feelings. I knew everything he was explaining. Then when they sang the closing song it hit me as well..."I'll Go Where You Want Me to Go". The following phrases were the one's that touched me:
                                                                                   
                        But if, by a still, small voice he calls
                          To paths that I do not know,
                        I'll answer, dear Lord, with my hand in thine:
                        I'll go where you want me to go.
                          Perhaps today there are loving words
                       Which Jesus would have me speak;...
                       O Savior, if thou wilt be my guide,
                       Tho dark and rugged the way,
                       My voice shall echo the message sweet:
                       I'll say what you want me to say.
                         So trusting my all to thy tender care,                        
                      And knowing thou lovest me,
                      I'll do thy will with a heart sincere:
                      I'll be what you want me to be.
                  [Chorus]
                      I'll go where you want me to go, dear Lord,
                      Over mountain or plain or sea;
                      I'll say what you want me to say, dear Lord;
                      I'll be what you want me to be.


Sunday, January 11, 2015

Pain in lower left side.....

     So a couple of days before New Years I started having this pain in my lower left side. It comes and it goes but sometimes is really intense. So after about a week I went to see my regular doctor, Dr. Hales. He did all these tests CT, blood work, etc. When everything came back he called and said I can't figure out why you're having this pain. So we are on a watch and wait basis. He told me to tell the OB Oncologist (Dr. Dodson) that on the CT it showed a lesion on my adrenal gland. It was on the scan they did in St. George as well but not on a scan 8 years prior. It hasn't grown any since last May but he wanted me to make sure and let him know. I see Dr. Dodson on the 20th. I hope it isn't anything....I really don't want to have to go through chemo again soon. I am finally feeling strong enough to try and do some cleaning etc. around the house but I get so exhausted doing the smallest thing, then I have to sit down and rest for a bit. Each day I gain a little more stamina and can do more things than before I get tired. My hair on my head is getting a little longer, a little over a ¼ of an inch. Where I really lost my hair, some stubble's are starting to come in (its like 2 different lengths). Around the house I just go bald unless my head gets cold, then I put on a hat. If I'm going out for the day, like to the doctors or something, I wear my wig. I have to use glue in a couple of spots to keep it on. To get the glue off is a different story! Goof Off would work great but I'm not sure I want to see it get absorbed into my brain. I tried everything; peanut butter, olive oil, soap, vegetable oil, rubbing/picking it out etc. Sometimes it pulls out some of the new hair that's growing in :(... I finally tried some oil free makeup remover and that works the best!
Well Dad gets his cast off this Wednesday, January 14th and the pins taken out. Then we'll see how things look. 

Thursday, January 8, 2015

Wearing Just a Hat...No Wig....

     I decided to be brave and go to the grocery store with just a hat not my wig. I asked Mark if it looked just like I was wearing a hat or like I had cancer? He said both. Hmm... Well I went anyway. I walked into the store and not more than 20' into the store I noticed a lady looking at me as if I was a freak. Really people think how I feel... Gratefully I ran into a friend and I asked her the same question I asked Mark. I didn't really give her a chance to answer because I knew her answer would be the same as Marks. As I did my shopping people would look at me but most didn't give me odd stares like the first lady. The next day I happened to be going to the doctors for a CT scan. Afterwards I was starving because I had to fast for like 24 hrs and then drink this stuff. Anyway I stopped by the cafe to grab a snack ( I hadn't worn my wig to the appointment just a hat) and the helper behind the counter noticed me and asked if I didn't mind telling him what type of treatment I was going through. Well it was really easy to open up to him because you could tell he knew I was going through something but it didn't matter to him he didn't look at me weird or make me feel uncomfortable. He asked some more questions about what kind of cancer etc. It wasn't a long encounter with him but it made me feel like I was a person not a freak. I went home and told Mark about it and I realized that the lady at the store made me feel uncomfortable. I told him about the experience at the cafe and the big difference it made for me. That guy saw me as a person going through something, he wasn't afraid to ask me questions, he made me feel like I was a person! I really thought about these two experiences a lot. It made an impression on me on how we treat others. We certainly don't know what people are going through but it doesn't mean we should treat them any different.
     I had the opportunity to go with Mark to the ortho doctor and in the waiting room was a woman wearing a pink breast cancer scarf talking on the phone. I went over to her and she told the person she would call her back. I had mentioned the experience I had just related above to her and I told her I just had to come to talk with her as a normal person. We talked about her experience with how people react to her and it was basically the same. We continued talking for a minute about her cancer, her daughter having knee surgery etc. I wished her good luck and was on my way. It was just a short conversation but I know it made me feel good and I can imagine that it made her feel just as good. Don't think because we have cancer we all of the sudden become different, we are the same people as before. We think, feel, cry and care just the same as you. Remember to break out of your comfort zone and make someones day like the guy at the cafe did for me. You never know how much your interaction could help that individual.

Tuesday, December 30, 2014

Endurance....Side Effects of Taxol....Ingrown Toenail....

     Everything takes extra time for us getting ready to go somewhere; with Mark and his broken ankle and two hammer toes fixed (1) on each foot, Paul who is generally slow anyway and then myself with the cancer and my foot in a boot. I'm exhausted just getting everyone ready let alone going to where we are going. Austin, Mitch and Chris have been really helpful especially with Mark. Paul has actually been really helpful also. This is the process we go through with Mark every time we go somewhere; to leave the house he uses his scooter to go to the front door, someone holds the door open, he can use the railing & the scooter to slowly go down the steps, then he gets in the car and someone has to lift his scooter into the back of the car. Getting back into the house is a little different. Someone gets the scooter out, he gets on it, scoots over to the front steps, someone hands him his crutch and his gloves and he hops up the steps, then someone lifts up the scooter to the porch he gets on and goes inside. As you can see it's a project. He is doing really well except for the boredom. Sometimes I would keep Paul home either because I was sick, didn't have the energy or was overwhelmed. See Mark usually would get Paul up and ready for the bus and work and now since he's been not weight bearing it's fallen to me to take care of him which is ok but with being sick I just did what I could.
     I ended up getting an ingrown toenail so my doctor put me on an antibiotic. It wasn't getting better so I had to go to the foot doctor and have her cut the nail out. She extended the antibiotic. She also told me that one of the chemo medicines I was on the (Taxol) had a side effect of ingrown toenails.

Sunday, December 28, 2014

Last Chemo Treatment!!!!...feelings...

     I am quite relieved that this year is coming to a close and hoping that the New Year will be filled with; good health, love, optimism, growth, and happiness! I had my last Chemo appointment last Monday a few days before Christmas. I was hoping I would feel better to be able to enjoy Christmas. I did enjoy it I just got extremely exhausted along with the usual nausea. I'm excited to think that I won't be nauseated anymore! I'm getting used to wearing my wig. It gets hot so at home I usually wear a bandanna or a hat. I don't really care if people that come by frequently see me bald but I'm still uncomfortable with people in general seeing me. Like Matt & Mitch have seen me bald and the family. Peyton is getting used to it. I like the wig. It was bright blonde when I got it, it wasn't me so I colored it the day after I got it. I used a colored mousse because I wasn't sure how quickly it would grab the color. I thought it turned out really good. It was my mom's German Christmas party that same night. It took me forever to color the wig so we were late to the party. When I walked in everyone oohed and awed over how good my wig looked and how natural it was. The party was fun.  
     We have had one thing after another happen this year, I hope we are done. Being sick has worn on me. Physically I'm exhausted. I have never felt a total exhaustion like the exhaustion chemo gives you. My red blood cells are low so I'm anemic, my white blood cells are low so my chances of getting sick are increased, so I'm constantly washing my hands. With having low red blood cells (which are the cells that carry your oxygen) your body isn't getting enough oxygen throughout your body, causing you to have effects like; when picking something up off of the floor and being dizzy upon standing up, getting winding climbing the stairs, and not thinking clearly. You also get what they call chemo brain. The doctor told me it was like not forgetting but not being able to come up with the right word. At first during the chemo I didn't notice it to much but towards the end I began to notice it a lot. When I sit down to write something is where I notice it the most. I will go back and read what I had written and it didn't make sense. I either had double words, left out a word or had put in another word for what I actually meant to say. In a conversation I'll be telling someone something and I can't come up with the word, so I will explain what the word I want does or something like that. The person I'm talking with can usually help fill in the word or I might come up with it on my own after awhile. It's frustrating. I don't trust what I'm trying to say sometimes. I have had some depression creep in at times but I think it's mostly because I'm become worn down.

Monday, December 22, 2014

2nd to Last Chemo Treatment!...Going Bald...Getting My Wig, ......


I am really excited to talk with my Son Elder Featherstone (Parker) on Christmas!! Today is my last chemo treatment! I will be sick for a day or two but will hopefully be better to enjoy Christmas. My doctor’s office is closing. Her partner is retiring so Dr. Prystas will be moving over to Huntsman Cancer. I will continue to see her there. I will also continue to see my OB Oncologist. Last week was my last visit at their office. My nurse Kathy gave me a treat bag with a granola like mix in it with a label saying, congratulations on your last treatment!
I have now had massive amounts (handfuls) of hair coming out, so I made the decision to call my wig guy (Rich) and tell him I was ready. I had been shedding so much it got to be so annoying, I was done, it was coming off. So on Friday afternoon after Peyton’s preschool
program I received a phone call from Rich saying he had an opening at 5 pm and wanted to know if I wanted it? Of course I did, or did I? I was ready…We went to the salon, Mark, Courtney and I. Rich wanted Mark to wait out front so it would be a surprise, so he went around the mall while he waited. Courtney stayed with me (she was so great!). We all helped pick the color of the wig. Then they sat me down for buzzing it off. I had her turn me so I couldn’t watch it in the mirror (Courtney took pictures). I was nervous but I was ready. After they shaved all my hair off she took me over to wash my hair and do a scalp treatment, then she brought me back to the hair chair. I looked up…..I was bald….I was doing ok. My first thought was I looked like Lex Luther. Just then the song from the movie “Frozen” came on over the radio. The words I heard at that particular moment were; let it go, let it go…It was at that moment that I broke into tears. I was letting it go. Cute Courtney was teary as well and came over to give me a hug. It was at that moment that I realized how sick I was. I looked like someone who was sick. We shared a sweet moment together.

  ....Ready to get my wig....               ....Starting the buzz....                         ....My Mohawk....                




Picture #4 Almost finished, eyes still closed...
            #5 Realization just how sick I really was. "Let it go"...
            #6 Fitting the wig...
            #7 Cutting the wig
            #8 The new me...for awhile....      

Since my doctors office was closing I actually had my last chemo treatment at LDS Hospital. They were really sweet and gave me a bottle of Martinelies to congratulate me even though I hadn't been getting all my treatments with them.
                                         

Monday, December 15, 2014

Being the Recipients of Selfless Acts of Love...........


     I have to write this while I'm at chemo today. We had the progressive dinner yesterday, it was fun but exhausting. Mark only went to the main course at Lorraine & Cort's house. Santa came for all the kids. Courtney was so sweet; she went shopping for me, made the salads, helped clean up etc. Chris helped also just not quite as much as Courtney. At the beginning of the week I was exhausted from getting up with Mark in the night. I had a final on my birthday and then went to chemo (a 2 med week). So between taking care of Mark, me being sick with chemo and having to get Paul up and ready for work and then being up in the night with Mark I was shot! I ended up keeping Paul home a couple of days.
     Monday night Ethan and Michael (some boys in the ward) put the lights on the tree. On Tuesday Lisa and Jenn came to help clean the house and decorate. It was really nice of them. They decorated things differently than I usually do, it was really cute. I got a new perspective on how I could decorate things differently. Wednesday night we celebrated my birthday. I got a new laptop and its touch, very cool! My other one is so slow and I'm afraid it was going to give out in the middle of school. It’s really nice. Chris did a great job picking it out and then following through with getting it after the stores web site went down right after going on sale. Thursday, Friday and Saturday I was sick. Now the littlest thing makes me throw up. On Friday my dear friend MaryAnn and her husband Paul paid to have their housekeeper come to clean my house. It was so needed for me mentally they will never know how much I appreciated that! Saturday was the ward Christmas breakfast, we went but got there late, we made it though. People were really sweet to come and say hi. Again Courtney was there to help Mark with getting his food because I wasn't feeling very good.

     Our sweet friends and ward have been so awesome to help us with bringing in meals, cleaning, picking things up at the store, sending notes, and stopping by. My family has been just as awesome! My Dad calls me many times to see how I'm doing, even though he's going through his own health issues right now. 
     If ye have done it unto to the least of these then ye have done it unto me...

Thank you so very much to all of you who have touched our lives in so many ways, may you all be                                                           blessed as abundantly as we have...