Well I
think I might be getting more brave going out without my wig on :). I
went to the grocery store by myself with just a hat on-no stares, at
least ones that I was aware of. Most of the time at home I just go
bald or wear my bandanna. If someone comes to the door I quickly
throw on a hat or bandanna. The other night someone came by the
door, Austin answered it and said it was for me, so I came to the
door and was just talking with this person (he wasn't looking at me
weird or anything). We were carrying on a conversation when all of
the sudden I realized I hadn't put on a hat or my bandanna. Oops! I
was ok though, it didn't bug me. Usually its only close friends and
family that I have let see me bald. I realized it was ok, that is who
I am right now. That was a huge step for me to realize. Mark and I
decided to run to the store, I didn't have my wig on cause I'd been
home all day, so I just grabbed my Disney cap and put it on to go to
the store. I told Mark to watch for people staring at me but neither
of us really noticed any staring. Some people just smiled, others
looked and then went on with there business. Even the pharmacy staff
didn't bat an eye and they usually see me with my wig.
A miracle find - Fallopian Tube Cancer and my journey of discovery...
Wednesday, February 18, 2015
Getting Braver.....
Wednesday, February 4, 2015
Reflections....Cancer.net....
Reflections (taken
from http://www.cancer.net)
The end of
treatment can be a time to look forward to
the future.
New rituals and new beginnings can bring a
and
emotional change.
Now that
treatment is over, try to take time to get
back in
tune with yourself. Allow healing time for
you and
your family members and caregivers. Think
about what
you can do to begin living without cancer
as a main
focus.
Whether
good or bad, life-changing situations often
give people
the chance to grow, learn, and appreciate
what’s
important to them.
Many people
with cancer describe their experience
as a
journey. It’s not necessarily a journey they would
have chosen
for themselves.
But it
sometimes presents the opportunity to look at
things in a
different way.
Tuesday, January 27, 2015
Out of the mouths of babes....
Well over
the weekend I developed another ingrown toenail this time on the big
toe of my right foot. Another dose of antibiotic as well because it
was infected....
Today I went to run some errands and braved taking
my grand-daughter with me. (I love to take them its just my energy
level when I take them). So going in and out of stores (it was windy)
this was the conversation:
Peyton:
“Grandma Laurie your hair is going to blow off”
Laurie: “it
will be ok”
Peyton: “my
hair is long and won't come off'”
Laurie:
“mine is long also so mine wouldn't come off either”.
Peyton:“
but grandma Laurie yours is just a wig, its not really long”
(referring to my bald head underneath)....
Here's a
current picture of me with my wig:
Tuesday, January 20, 2015
Four Month Follow Up With Dr. Dodson....side pain...
Today I
went to see the OB Oncologist, Dr. Dodson. We waited awhile before we
got in, he had an emergency he was trying to work in. He said I only
needed to be seen every (4) months for the next (2) years by either
him or the chemo doctor (Dr. Prystas). When I came in I would have a
physical exam and take blood to check the cancer marker CA-125. We
want my levels to be below 35. He said everything looked good. I
asked him about the lesion on my adrenal gland (that they found on my
CT scan) even though it was small (2mm). He said he wanted me to go
see a general surgeon and let him decide what to do about it. So I
have an appointment next week to see doctor Heidi Jackson. Hopefully
it's nothing. He said I don't have to do my immunizations again ,
just the yearly flu shot. I told him about the pain I've been having
on my left side and that we got a CT scan (which looked ok) and tried
some medications for my bowel to see if that would help the pain. He
thought it might be scar tissue and that would just go away with
time. A good thing he said is it's not cancer because cancer doesn't
hurt. You learn something new everyday. I also still have the
fatigue. We asked the doctor how long it would take for the fatigue
to go away and said at least 6 months to a year. Aghhh! Each day I
can do a little bit more before the fatigue sets in then I'm done.
Sometimes it takes me the whole next day to recover. We also asked
him how long before I could do surgery on my foot. He said a minimum
of 3-6 months after I stopped the chemo. So the earliest I could do
the surgery would be the end of March first of April. I guess I will
just have to wear the boot until then. I still have chemo brain and
it really bugs me. I'll go back and read things I've written and it
doesn't make sense. I guess I'm going to have to do some brain games
or exercises to see if that will help.
Monday, January 19, 2015
Touched by Sweet Remarks....
Yesterday for Sacrament mtg. the speakers topic was on Depression. The first speaker has chronic depression and shared some personal feelings and experiences that she has had. What it feels like, how sometimes the sadness is so overwhelming that nothing helps. She made the comment that she had tried to take her own life (3) times. it was her faith that she kept holding on to, especially in the darkest hours. She is an amazing woman. I knew she had struggled with health issues but didn't know what and to the extent it was. Never judge a book by its cover ...you never know what someone is going through until you've been in their shoes yourself.
The second speaker was a clinical psychologist who had been practicing for 30 years. He was serving currently as a bishop in our stake. He was also very personal, telling us that he himself is on medication. He tries to go off of it every once in awhile for a few days and realizes that it makes a difference so he starts taking it again. He proceeded to talk about the myths of depression and what the real truth is behind them. One statistic he gave was that 60% of people that go see the doctor have some kind of mental illness, not just depression. He also stated that most people will have at least one major depressive episode in their lifetime. Then he proceeded to tell his own personal story of when his wife was diagnosed with breast cancer. He spoke about when they found out the first thing you think of is dying, you become overwhelmed. He talked about how the only treatment they recommended at the time was a radical intense chemo treatment. So they asked how much it would cost? It would be $150,000. They didn't have very good health insurance at the time and most insurance companies wouldn't cover the treatment. So, they had to raise the money. With the efforts of friends and family they were able to raise $88,000 with in about 3 weeks. He talked about what the chemo did to your body, in that it takes you to where you are almost dying in order to kill the cancer cells. He talked about how sick she got and weak. He mentioned how their Relief Society brought dinner into them for weeks. He and his wife commented how "in the midst of your affliction your table is spread". They had so many answers to prayers and miracles happen. He said at one point when his wife was in the hospital and was very down, the impression came to her that every thing would be alright. He was mowing the lawn crying while he was doing so, not knowing how they would handle this, when he received an impression that everything would be alright. They put their trust and faith in God. Twenty years later she is still cancer free.
So far it had been an excellent mtg. until he started to talk about his wife and her cancer. I fought to hold back my tears! It was so close to home for me. I could relate to everything he was saying. I had been there and had those feelings. I knew everything he was explaining. Then when they sang the closing song it hit me as well..."I'll Go Where You Want Me to Go". The following phrases were the one's that touched me:
But
if, by a still, small voice he calls
The second speaker was a clinical psychologist who had been practicing for 30 years. He was serving currently as a bishop in our stake. He was also very personal, telling us that he himself is on medication. He tries to go off of it every once in awhile for a few days and realizes that it makes a difference so he starts taking it again. He proceeded to talk about the myths of depression and what the real truth is behind them. One statistic he gave was that 60% of people that go see the doctor have some kind of mental illness, not just depression. He also stated that most people will have at least one major depressive episode in their lifetime. Then he proceeded to tell his own personal story of when his wife was diagnosed with breast cancer. He spoke about when they found out the first thing you think of is dying, you become overwhelmed. He talked about how the only treatment they recommended at the time was a radical intense chemo treatment. So they asked how much it would cost? It would be $150,000. They didn't have very good health insurance at the time and most insurance companies wouldn't cover the treatment. So, they had to raise the money. With the efforts of friends and family they were able to raise $88,000 with in about 3 weeks. He talked about what the chemo did to your body, in that it takes you to where you are almost dying in order to kill the cancer cells. He talked about how sick she got and weak. He mentioned how their Relief Society brought dinner into them for weeks. He and his wife commented how "in the midst of your affliction your table is spread". They had so many answers to prayers and miracles happen. He said at one point when his wife was in the hospital and was very down, the impression came to her that every thing would be alright. He was mowing the lawn crying while he was doing so, not knowing how they would handle this, when he received an impression that everything would be alright. They put their trust and faith in God. Twenty years later she is still cancer free.
So far it had been an excellent mtg. until he started to talk about his wife and her cancer. I fought to hold back my tears! It was so close to home for me. I could relate to everything he was saying. I had been there and had those feelings. I knew everything he was explaining. Then when they sang the closing song it hit me as well..."I'll Go Where You Want Me to Go". The following phrases were the one's that touched me:
But
if, by a still, small voice he calls
To paths that I do not
know,
I'll answer, dear Lord, with my hand in thine:
I'll go where you want me to go.
I'll answer, dear Lord, with my hand in thine:
I'll go where you want me to go.
Perhaps
today there are loving words
Which Jesus would have me speak;...
O Savior, if thou wilt be my guide,
Tho dark and rugged the way,
My voice shall echo the message sweet:
I'll say what you want me to say.
Which Jesus would have me speak;...
O Savior, if thou wilt be my guide,
Tho dark and rugged the way,
My voice shall echo the message sweet:
I'll say what you want me to say.
So trusting my all to thy tender care,
And knowing thou lovest me,
I'll do thy will with a heart sincere:
I'll be what you want me to be.
And knowing thou lovest me,
I'll do thy will with a heart sincere:
I'll be what you want me to be.
[Chorus]
I'll go where you want me to go, dear Lord,
Over mountain or plain or sea;
I'll say what you want me to say, dear Lord;
I'll be what you want me to be.
I'll go where you want me to go, dear Lord,
Over mountain or plain or sea;
I'll say what you want me to say, dear Lord;
I'll be what you want me to be.
Sunday, January 11, 2015
Pain in lower left side.....
So a couple
of days before New Years I started having this pain in my lower left
side. It comes and it goes but sometimes is really intense. So after
about a week I went to see my regular doctor, Dr. Hales. He did all these tests CT,
blood work, etc. When everything came back he called and said I can't
figure out why you're having this pain. So we are on a watch and wait
basis. He told me to tell the OB Oncologist (Dr. Dodson) that on the
CT it showed a lesion on my adrenal gland. It was on the scan they
did in St. George as well but not on a scan 8 years prior. It hasn't
grown any since last May but he wanted me to make sure and let him
know. I see Dr. Dodson on the 20th.
I hope it isn't anything....I really don't want to have to go through
chemo again soon. I am finally feeling strong enough to try and do
some cleaning etc. around the house but I get so exhausted doing the
smallest thing, then I have to sit down and rest for a bit. Each day
I gain a little more stamina and can do more things than before I get
tired. My hair on my head is getting a little longer, a little over a
¼ of an inch. Where I really lost my hair, some stubble's are
starting to come in (its like 2 different lengths). Around the house I just go bald unless my head gets cold, then I
put on a hat. If I'm going out for the day, like to the doctors or
something, I wear my wig. I have to use glue in a couple of spots to
keep it on. To get the glue off is a different story! Goof Off would
work great but I'm not sure I want to see it get absorbed into my
brain. I tried everything; peanut butter, olive oil, soap, vegetable
oil, rubbing/picking it out etc. Sometimes it pulls out some of the
new hair that's growing in :(... I finally tried some oil free makeup
remover and that works the best!
Well Dad
gets his cast off this Wednesday, January 14th and the pins taken
out. Then we'll see how things look.
Thursday, January 8, 2015
Wearing Just a Hat...No Wig....
I
decided to be brave and go to the grocery store with just a hat not
my wig. I asked Mark if it looked just like I was wearing a hat or
like I had cancer? He said both. Hmm... Well I went anyway. I walked
into the store and not more than 20' into the store I noticed a lady
looking at me as if I was a freak. Really people think how I feel...
Gratefully I ran into a friend and I asked her the same question I
asked Mark. I didn't really give her a chance to answer because I
knew her answer would be the same as Marks. As I did my shopping
people would look at me but most didn't give me odd stares like the
first lady. The next day I happened to be going to the doctors for a
CT scan. Afterwards I was starving because I had to fast for like 24
hrs and then drink this stuff. Anyway I stopped by the cafe to grab a
snack ( I hadn't worn my wig to the appointment just a hat) and the
helper behind the counter noticed me and asked if I didn't mind
telling him what type of treatment I was going through. Well it was
really easy to open up to him because you could tell he knew I was
going through something but it didn't matter to him he didn't look at
me weird or make me feel uncomfortable. He asked some more questions
about what kind of cancer etc. It wasn't a long encounter with him
but it made me feel like I was a person not a freak. I went home and
told Mark about it and I realized that the lady at the store made me
feel uncomfortable. I told him about the experience at the cafe and
the big difference it made for me. That guy saw me as a person going
through something, he wasn't afraid to ask me questions, he made me
feel like I was a person! I really thought about these two
experiences a lot. It made an impression on me on how we treat
others. We certainly don't know what people are going through but it
doesn't mean we should treat them any different.
I
had the opportunity to go with Mark to the ortho doctor and in the
waiting room was a woman wearing a pink breast cancer scarf talking
on the phone. I went over to her and she told the person she would
call her back. I had mentioned the experience I had just related
above to her and I told her I just had to come to talk with her as a
normal person. We talked about her experience with how people react
to her and it was basically the same. We continued talking for a
minute about her cancer, her daughter having knee surgery etc. I
wished her good luck and was on my way. It was just a short
conversation but I know it made me feel good and I can imagine that
it made her feel just as good. Don't think because we have cancer we
all of the sudden become different, we are the same people as before.
We think, feel, cry and care just the same as you. Remember to break
out of your comfort zone and make someones day like the guy at the
cafe did for me. You never know how much your interaction could help
that individual.
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