Tuesday, January 27, 2015

Out of the mouths of babes....

     Well over the weekend I developed another ingrown toenail this time on the big toe of my right foot. Another dose of antibiotic as well because it was infected.... 

     Today I went to run some errands and braved taking my grand-daughter with me. (I love to take them its just my energy level when I take them). So going in and out of stores (it was windy) this was the conversation:

Peyton: “Grandma Laurie your hair is going to blow off”
Laurie: “it will be ok”
Peyton: “my hair is long and won't come off'”
Laurie: “mine is long also so mine wouldn't come off either”.
Peyton:“ but grandma Laurie yours is just a wig, its not really long” (referring to my bald head underneath)....
Here's a current picture of me with my wig:


Tuesday, January 20, 2015

Four Month Follow Up With Dr. Dodson....side pain...

Today I went to see the OB Oncologist, Dr. Dodson. We waited awhile before we got in, he had an emergency he was trying to work in. He said I only needed to be seen every (4) months for the next (2) years by either him or the chemo doctor (Dr. Prystas). When I came in I would have a physical exam and take blood to check the cancer marker CA-125. We want my levels to be below 35. He said everything looked good. I asked him about the lesion on my adrenal gland (that they found on my CT scan) even though it was small (2mm). He said he wanted me to go see a general surgeon and let him decide what to do about it. So I have an appointment next week to see doctor Heidi Jackson. Hopefully it's nothing. He said I don't have to do my immunizations again , just the yearly flu shot. I told him about the pain I've been having on my left side and that we got a CT scan (which looked ok) and tried some medications for my bowel to see if that would help the pain. He thought it might be scar tissue and that would just go away with time. A good thing he said is it's not cancer because cancer doesn't hurt. You learn something new everyday. I also still have the fatigue. We asked the doctor how long it would take for the fatigue to go away and said at least 6 months to a year. Aghhh! Each day I can do a little bit more before the fatigue sets in then I'm done. Sometimes it takes me the whole next day to recover. We also asked him how long before I could do surgery on my foot. He said a minimum of 3-6 months after I stopped the chemo. So the earliest I could do the surgery would be the end of March first of April. I guess I will just have to wear the boot until then. I still have chemo brain and it really bugs me. I'll go back and read things I've written and it doesn't make sense. I guess I'm going to have to do some brain games or exercises to see if that will help. 

Monday, January 19, 2015

Touched by Sweet Remarks....

     Yesterday for Sacrament mtg. the speakers topic was on Depression. The first speaker has chronic depression and shared some personal feelings and experiences that she has had. What it feels like, how sometimes the sadness is so overwhelming that nothing helps. She made the comment that she had tried to take her own life (3) times. it was her faith that she kept holding on to, especially in the darkest hours. She is an amazing woman. I knew she had struggled with health issues but didn't know what and to the extent it was. Never judge a book by its cover ...you never know what someone is going through until you've been in their shoes yourself.
     The second speaker was a clinical psychologist who had been practicing for 30 years. He was serving currently as a bishop in our stake. He was also very personal, telling us that he himself is on medication. He tries to go off of it every once in awhile for a few days and realizes that it makes a difference so he starts taking it again. He proceeded to talk about the myths of depression and what the real truth is behind them. One statistic he gave was that 60% of people that go see the doctor have some kind of mental illness, not just depression. He also stated that most people will have at least one major depressive episode in their lifetime. Then he proceeded to tell his own personal story of when his wife was diagnosed with breast cancer. He spoke about when they found out the first thing you think of is dying, you become overwhelmed. He talked about how the only treatment they recommended at the time was a radical intense chemo treatment. So they asked how much it would cost? It would be $150,000. They didn't have very good health insurance at the time and most insurance companies wouldn't cover the treatment. So, they had to raise the money. With the efforts of friends and family they were able to raise $88,000 with in about 3 weeks. He talked about what the chemo did to your body, in that it takes you to where you are almost dying in order to kill the cancer cells. He talked about how sick she got and weak. He mentioned how their Relief Society brought dinner into them for weeks. He and his wife commented how "in the midst of your affliction your table is spread". They had so many answers to prayers and miracles happen. He said at one point when his wife was in the hospital and was very down, the impression came to her that every thing would be alright. He was mowing the lawn crying while he was doing so, not knowing how they would handle this, when he received an impression that everything would be alright. They put their trust and faith in God. Twenty years later she is still cancer free.
     So far it had been an excellent mtg. until he started to talk about his wife and her cancer. I fought to hold back my tears! It was so close to home for me. I could relate to everything he was saying. I had been there and had those feelings. I knew everything he was explaining. Then when they sang the closing song it hit me as well..."I'll Go Where You Want Me to Go". The following phrases were the one's that touched me:
                                                                                   
                        But if, by a still, small voice he calls
                          To paths that I do not know,
                        I'll answer, dear Lord, with my hand in thine:
                        I'll go where you want me to go.
                          Perhaps today there are loving words
                       Which Jesus would have me speak;...
                       O Savior, if thou wilt be my guide,
                       Tho dark and rugged the way,
                       My voice shall echo the message sweet:
                       I'll say what you want me to say.
                         So trusting my all to thy tender care,                        
                      And knowing thou lovest me,
                      I'll do thy will with a heart sincere:
                      I'll be what you want me to be.
                  [Chorus]
                      I'll go where you want me to go, dear Lord,
                      Over mountain or plain or sea;
                      I'll say what you want me to say, dear Lord;
                      I'll be what you want me to be.


Sunday, January 11, 2015

Pain in lower left side.....

     So a couple of days before New Years I started having this pain in my lower left side. It comes and it goes but sometimes is really intense. So after about a week I went to see my regular doctor, Dr. Hales. He did all these tests CT, blood work, etc. When everything came back he called and said I can't figure out why you're having this pain. So we are on a watch and wait basis. He told me to tell the OB Oncologist (Dr. Dodson) that on the CT it showed a lesion on my adrenal gland. It was on the scan they did in St. George as well but not on a scan 8 years prior. It hasn't grown any since last May but he wanted me to make sure and let him know. I see Dr. Dodson on the 20th. I hope it isn't anything....I really don't want to have to go through chemo again soon. I am finally feeling strong enough to try and do some cleaning etc. around the house but I get so exhausted doing the smallest thing, then I have to sit down and rest for a bit. Each day I gain a little more stamina and can do more things than before I get tired. My hair on my head is getting a little longer, a little over a ¼ of an inch. Where I really lost my hair, some stubble's are starting to come in (its like 2 different lengths). Around the house I just go bald unless my head gets cold, then I put on a hat. If I'm going out for the day, like to the doctors or something, I wear my wig. I have to use glue in a couple of spots to keep it on. To get the glue off is a different story! Goof Off would work great but I'm not sure I want to see it get absorbed into my brain. I tried everything; peanut butter, olive oil, soap, vegetable oil, rubbing/picking it out etc. Sometimes it pulls out some of the new hair that's growing in :(... I finally tried some oil free makeup remover and that works the best!
Well Dad gets his cast off this Wednesday, January 14th and the pins taken out. Then we'll see how things look. 

Thursday, January 8, 2015

Wearing Just a Hat...No Wig....

     I decided to be brave and go to the grocery store with just a hat not my wig. I asked Mark if it looked just like I was wearing a hat or like I had cancer? He said both. Hmm... Well I went anyway. I walked into the store and not more than 20' into the store I noticed a lady looking at me as if I was a freak. Really people think how I feel... Gratefully I ran into a friend and I asked her the same question I asked Mark. I didn't really give her a chance to answer because I knew her answer would be the same as Marks. As I did my shopping people would look at me but most didn't give me odd stares like the first lady. The next day I happened to be going to the doctors for a CT scan. Afterwards I was starving because I had to fast for like 24 hrs and then drink this stuff. Anyway I stopped by the cafe to grab a snack ( I hadn't worn my wig to the appointment just a hat) and the helper behind the counter noticed me and asked if I didn't mind telling him what type of treatment I was going through. Well it was really easy to open up to him because you could tell he knew I was going through something but it didn't matter to him he didn't look at me weird or make me feel uncomfortable. He asked some more questions about what kind of cancer etc. It wasn't a long encounter with him but it made me feel like I was a person not a freak. I went home and told Mark about it and I realized that the lady at the store made me feel uncomfortable. I told him about the experience at the cafe and the big difference it made for me. That guy saw me as a person going through something, he wasn't afraid to ask me questions, he made me feel like I was a person! I really thought about these two experiences a lot. It made an impression on me on how we treat others. We certainly don't know what people are going through but it doesn't mean we should treat them any different.
     I had the opportunity to go with Mark to the ortho doctor and in the waiting room was a woman wearing a pink breast cancer scarf talking on the phone. I went over to her and she told the person she would call her back. I had mentioned the experience I had just related above to her and I told her I just had to come to talk with her as a normal person. We talked about her experience with how people react to her and it was basically the same. We continued talking for a minute about her cancer, her daughter having knee surgery etc. I wished her good luck and was on my way. It was just a short conversation but I know it made me feel good and I can imagine that it made her feel just as good. Don't think because we have cancer we all of the sudden become different, we are the same people as before. We think, feel, cry and care just the same as you. Remember to break out of your comfort zone and make someones day like the guy at the cafe did for me. You never know how much your interaction could help that individual.